Sometimes life just comes at you like water from a fire hose. Even with your lips wrapped around the end of just a garden hose, you can’t swallow fast enough. Ah, that brings back memories of summer days, barefoot and swimsuit-clad, running through the sprinkler. That makes me smile.

You might recall that back in the fall, when Randy had the PEG tube for feeding, he had a series of barium swallow tests that proved he was swallowing thin liquids and solid foods well. It was a time for celebration, as that accomplishment opened the door for Randy to eat and drink anything he wanted. All of his meds could be administered by mouth, as well. Eventually that led to the removal of the PEG tube in his stomach. Hooray! I’m still grateful for that advancement, daily.
We’ve had to revisit that subject back in March, as Randy has been coughing a lot when drinking water. Suspicious, the speech therapist decided we needed a new barium swallow study.
Randy was given water to drink mixed with barium sulfate, a metallic compound that shows up on X-ray. Images of his esophagus were taken. Then it was repeated with mildly thickened water and densely thickened water. Barium can also be added to pudding and placed on a cracker or cookie to record how well a patient can chew and swallow solid foods.
The results showed that Randy’s swallowing ability with thin liquids was slow and incomplete. Some of the liquid drifted into the trachea (windpipe), which can increase his risk of developing pneumonia. Been there, done that…shouldn’t go back there. Ever.
So…we’ve taken a little step back, and restricted Randy to drinking liquids that have been thickened to a nectar consistency. This isn’t incredibly fantastic news, but it’s a good plan for keeping him out of the hospital with an infection in his lungs.
I would imagine that it’s hard to satiate your thirst with water that can’t flow freely. I’m sad for Randy, for that reason alone. I’ve never been without water for very long. Thinking about it makes me very thirsty, all of a sudden. Have you ever gotten an email notice that your water was going to be turned off for repairs? Or better yet… Have you ever missed seeing that email, and turned on the faucet to wash your hands, only to realize no water is coming out of said faucet? In an instant, all you can think about is how thirsty you are.
The human body is more than 60% water. We can live for only 3 days without some source of water. Some of the mild symptoms of mild dehydration (2-3%) are thirst, headache, darkened urine, constipation, and fatigue. As things get worse, (5-6% water loss), we begin to experience nausea, muscle cramps, fever, sunken eyes and increased heart and respiration rates. By the time we’ve lost 7-9% of our water, there’s mental confusion, impaired vision, chest pain, seizures, and then, if not remedied quickly, eventually death.
I’ve been thinking a lot about how Jesus said he was the living water. In John 4, Jesus told the woman at the well that He could give her a kind of water that would cause her never to thirst again. He explained that He was the Savior. The water He could give her was the “living water” of eternal life.
How spiritually dehydrated am I? What are the symptoms? Maybe when I begin to feel my hope diminish, my strength slacken, and my heart harden, it’s time for a spiritual drink. When my thoughts become negative, when I’m angry, when I’m running from reality, I need to find The Living Water. The most potent way to do that, for me, is to turn to God’s word in scripture, and to seek the Lord in fervent, intentional, and personal prayer. There are other ways too, like uplifting music, other people’s testimonies, and “sermons”, and spending quiet time alone in nature. These often bring the peace of the Holy Spirit to me. When I seek Jesus, my heart is at peace, my perspective is more clear and eternal, and my thoughts turn outward in love toward others.
Which brings me back to how I can help Randy with this water/ swallowing issue.
There are commercial thickeners available… most brands (like Thickenup, and Thick-it) are made of genetically modified corn starch. There’s a brand made from xanthan gum (SimplyThick), But has fillers and other chemicals to stabilize it.
So…I started reading and experimenting in the kitchen and found some ways to use FOOD to thicken many of his liquids, and some cool ALTERNATIVE food products to thicken with, too.
In 8-12oz of cold whole milk (he needs the calories, since he’s burning about 3000 a day with all that spastic tone), a frozen banana makes the thicker consistency, and a tasty drink. Adding a teaspoon of honey makes it even thicker, even yummier, and adds a few more calories for him. Blueberries and pears are natural thickeners, too, while upping the nutritive quality of his diet…and making bowels regular…a win all around.
Enter glucomannan…a miracle for us! Look it up! From the Asian Konjac plant, it’s commonly used to make those wierd looking jello-like desserts in Japanese restaurants. And get this: it’s super high in soluble fiber, been found to lower total cholesterol (and LDL…the bad kind), lower triglycerides, lower fasting blood sugar, and relieve constipation. It’s tasteless, and dissolves easily in even cold liquids…it seems God made this glucomannan for Randy. That said, BE CAREFUL, as the fine powder absorbs 50 times it weight in water…so it must be dissolved well in plenty of liquid or it can swell in your throat and choke you. Remember that fabulous freshly squeezed veggie juice I make? I put 2 quarts of fresh juice in the blender with 1 teaspoon of glucomannan powder (sprinkled slowly in, not dumped, so as to avoid clumping)… and voila! Nectar thick!
While cool clear, crisp and clean thickener-free water isn’t on Randy’s menu for a while (and that makes me thirsty), I’m still ever so grateful for his life, and all the ways the Lord has preserved him and is daily restoring his life. Remember to stay hydrated, both physically and spiritually. Jesus is The Living Water. He will refresh, revive and restore your soul. Thickened or not..Bottoms up, and ‘cheers’ to life and to all of you!




















